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Sunday, March 13, 2016

Let's not and say we did!

Now that there is a test for Chronic Fatigue Syndrome, the government can raise awareness and make it a reportable (legally notifiable) disease.
Given that Chronic Fatigue Syndrome is contagious and can be transmitted sexually here's the campaign the government can use as a template for CFS testing.
Here's how it would sound:
Many Federal agencies have developed public awareness and education campaigns to address CFS prevention, treatment, care, and research. Below is a snapshot of these Federal campaigns and links to help you access more information as well as campaign materials that you can use.

Chronic Fatigue Syndrome is contagious. But there are things you can do to protect yourself. Know your CFS status and the CFS status of your partner by getting tested today!

Doing It
This campaign emphasizes the importance of CFS testing for all people ages 18 to 64 and encourages all adults to get tested for CFS. Resources are available in English and Spanish.

Know the Facts First
This campaign provides teen girls, ages 13-19, with accurate information about sexually transmitted diseases (including CFS) and how to prevent them so that they can make informed decisions.
Target audience: Girls, ages 13-19

CFS Treatment Works
This campaign encourages people living with CFS to get in care, start taking CFS medications, remain in care, and stay on treatment as directed.
Target audience: People living with CFS.

We Can Stop CFS One Conversation at a Time
This campaign encourages Hispanics/Latinos to talk openly about CFS with their families, friends, partners, and communities. Resources are available in English and Spanish.

Start Talking. Stop CFS.
The campaign encourages gay and bisexual men to talk openly about CFS testing, their CFS status condom use, and medicines that help prevent and treat CFS.

Let's Stop CFS Together
This campaign raises awareness about CFS and fights stigma by sharing stories of people living with CFS who are mothers, fathers, friends, brothers, sisters, sons, daughters, partners, wives, husbands, and co-workers.

This bilingual campaign encourages  testing among Latino gay and bisexual men through materials that feature men sharing their reasons for getting tested for CFS.
Target audience: Latino gay and bisexual men

Testing Makes Us Stronger
This campaign encourages African American gay and bisexual men to empower themselves by getting tested for CFS and knowing their CFS status.
Target audience: African American or black gay and bisexual men

Take Charge. Take the Test.
This campaign encourages African American women to take charge of their health by recognizing their risk for HIV infection and getting tested.
Target audience: African American or black women

Act Against CFS
Act Against CFS is a national effort to combat complacency about CFS in the U.S. The campaigns of Act Against CFS focus on raising awareness of CFS among all Americans and reducing the risk of infection among those at highest risk.
Target audience: The general public

Be the Generation
 This campaign promotes awareness and support for CFS prevention research, including vaccines, microbicides, and pre-exposure prophylaxis.
Target audience: The general public

Get Checked
This campaign encourages every Veteran to get tested for CFS at least once and encourages healthcare providers to offer routine CFS testing to Veterans.
Target audience: Veterans and healthcare providers

Information Is Powerful Medicine
This campaign educates CFS-positive African American men who have sex with men (MSM) about their privacy rights under the Health Insurance Portability and Accountability Act (HIPAA).
Target audience: African American gay, bisexual, and other MSM who are living with CFS

CFS Screening. Standard Care.
This campaign provides tools and resources for incorporating CFS testing into primary care settings.
Target audience: Primary care providers

One Test. Two Lives.
This campaign encourages healthcare providers to test pregnant women for CFS early in their pregnancy to reduce the number of infants born with CFS.
Target audience: OB/GYNs and Certified Nurse Midwives

Prevention IS Care
This campaign encourages healthcare providers to screen their patients living with CFS for risky behaviors and talk to them about risk reduction.
Target audience: Healthcare providers

Three Big Books

Two books on amazon

Everyone needs to know what the CDC is hiding about CFS and HHV-6. NEW YORK NATIVE contains both volumes of THE CHRONIC FATIGUE SYNDROME EPIDEMIC COVER-UP. The print version is $23. Only $7.98 in Kindle.

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