Urge the NIH to read this book. Respond to their request for suggestions.

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Request for Information: Soliciting Input on How Best to Advance Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research


Purpose
In 2018 the National Institute of Neurological Disorders and Stroke (NINDS) formed a Working Group of the National Advisory Neurological Disorders and Stroke (NANDS) Council focused on how best to advance research on myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS). 
The Working Group, composed of scientists, clinicians, representatives from non-governmental organizations (NGOs), and individuals with ME/CFS, is charged with:
  1. identifying gaps and opportunities in ME/CFS research,
  2. considering unique opportunities for NIH-supported ME/CFS research to attract and train a pipeline of new and young investigators, and
  3. identifying potential approaches to enhance ongoing research collaboration and communication between NGOs, individuals with ME/CFS, researchers, and federal agencies that support research in ME/CFS.
The NANDS Council Working Group for ME/CFS is soliciting input on approaches and strategies to address the charge of the Working Group and will use the responses to this Request for Information (RFI) to help inform discussions of how to advance research on ME/CFS.
Information Requested
NIH is soliciting input from all interested stakeholders, including researchers, health care providers, individuals with ME/CFS, patient advocates and health advocacy organizations, scientific or professional organizations, federal agencies, as well as other interested members of the public. Organizations are strongly encouraged to submit a single response that reflects the views of their organization and membership as a whole.
 Please go to this link and urge everyone in this Working Group to read The Chronic Fatigue Syndrome Epidemic Cover-up.


https://www.ninds.nih.gov/RFI-NANDS-ME-CFS

Tell them they can find the book at this link www.cfsbook.com 

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