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Monday, December 31, 2018

Will the forthcoming New York Times Magazine piece on MECFS acknowledge the important Ampligen activism of Robert Miller?

Editor's note: We have learned that The New York Times has decided not to run this article

Robert Miller (Bob Miller) is a former labor organizer who advocates for FDA approval of Ampligen while living with myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS). He has been treated off and on with Ampligen since 1999. 
From 29 January 2013 to 8 February 2013, he undertook a "Hunger Strike for Ampligen Approval for CFS", ingesting only water and receiving saline infusions in order to call attention to the need for government participation in clinical trials that will lead to approval for Ampligen.[1]
In response to the Hunger Strike for Ampligen, Hemispherx Biopharma, the makers of Ampligen, issued a statement saying: “Hemispherx understands the frustration that there is still no FDA-approved treatment for chronic fatigue syndrome and the concern that patients may lose access to Ampligen therapy. Out of concern for the health of the CFS community, Hemispherx has asked any hunger strikes be discontinued and that patients join in a collaborative effort between the FDA, Hemispherx, CFS clinicians and patient advocates to find a solution to this significant unmet medical need.”[2]
Source: Wikipedia


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