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Friday, December 21, 2018

How Francis Collins should have responded to the letter from MEAction



Dear Dr. Collins,

Thank you for taking the time to meet with representatives of The Myalgic Encephalomyelitis Action Network (#MEAction) on Friday, December 7th. We appreciate your willingness to listen to our concerns and for the participation of Dr. Koroshetz, Dr. Nath, and NIH program staff.

We also appreciate that after our meeting with you, Dr. Koroshetz, Dr. Nath, and NIH program staff continued to meet with us for an extended time. We had useful discussions on various areas for NIH to make incremental progress and will follow up with them.

However, it was evident from our meeting that NIH lacks the urgency and commitment needed to deliver diagnostics and treatments to people with ME in time to save the millions of people whose lives and futures hang in the balance.

The NANDS working group’s charge lacks the mandate to achieve the kind of bold, time-driven outcomes we know the NIH can accomplish when the will is there. If NIH fails to act quickly and decisively, it will effectively sentence a generation who has already lived and waited decades for real progress, to die without ever seeing relief. Meanwhile, each year, thousands more Americans will receive their diagnosis without any more meaningful access to treatment or care than those who became ill in the 1980s.

You can accept this status quo, or you can do everything in your power to break this cycle.

The recent work of expert clinicians and researchers again demonstrate that there are numerous, untapped opportunities to deliver the first FDA-approved treatments and diagnostics within five years. But this will only happen through your leadership and innovation. You have the opportunity and position to make a dramatic difference for people with ME. We urge you to establish a strategic plan and provide the resources and vision needed to deliver these outcomes to people with ME as quickly as possible.

Sincerely,

Ben HsuBorger #MEAction 
Dear Ben,
Thank you for your letter. We enjoyed meeting with you. I think you'll be surprised to hear our good news.
We have decided that, because MECFS is so much like AIDS, we are going to immediately combine all AIDS and Chronic Fatigue Syndrome research into one big Manhattan Project kind of program. Chronic Fatigue Syndrome and AIDS will share all research funding. From now on, AIDS conferences will also be Chronic Fatigue Syndrome conferences. Our powerful biomedical institution will stop pretending that Chronic Fatigue Syndrome has nothing to do with AIDS. Any researcher who continues to promote that myth will be asked to find a new employer.
We have also decided that, because both AIDS and Chronic Fatigue Syndrome involve HHV-6 and its related viruses, we are going to give research priority to that virus. It has become clear that we are in the middle of an HHV-6/7/8 epidemic that threatens us all. As you know, The University of Wurzburg and Bhupesh Prusty have pretty much nailed the role of HHV-6 in Chronic Fatigue Syndrome.
We are also going to devote a substantial part of our budget to researching the use of AIDS drugs on Chronic Fatigue Syndrome patients. There have been several compelling reports of Chronic Fatigue Syndrome patients getting better on AIDS drugs like protease inhibitors and Ampligen. If studies support the use of these drugs, I will personally go to Congress and the White House to ask that all MECFS patients receive free treatment. You all have suffered enough.
We're also going to ask Robert Gallo, the scientist who claimed to have discovered the Chronic Fatigue Syndrome virus, HHV-6, to oversee trials of a drug Epiphany Biosciences (a company he co-founded) has developed for HHV-6. The promising drug is called Valomaciclovir.
I will also ask Dr. Gallo to fly to the headquarters of the World Health Organization to urge them to also combine all AIDS and Chronic Fatigue Syndrome research and treatment efforts.
We have also decided to make Chronic Fatigue Syndrome a National Notifiable Disease so we can finally determine how many cases there really are.
Given that it is clear MECFS is contagious, we are assigning a team of epidemiologists to monitor the transmission of the illness. We will be especially interested in the way that it is spread in families, schools, businesses, and healthcare settings. We will try to figure out what people can do to protect themselves from contracting this illness. But I do have to warn you that, given that this epidemic is several decades old, there may be little we can do to control it. We are concerned that we may not even be able to control the transmission of MECFS in our NIH facilities.
I hope this new agenda meets with your approval. I also hope you enjoyed the special NIH donuts we served at our meeting. I'm sorry I did not have time to pull out my famous guitar and sing "The Lady Upstairs," the very moving Chronic Fatigue Syndrome song I often play for my MECFS research staff to inspire them.
Thank you for being a passionate stakeholder and I look forward to reporting on our research progress in the near future.
Francis S. Collins


Is persistence of HHV-6 in monocytes another bit of evidence that it is really African Swine Fever?

Latent human herpesvirus 6 infection of human monocytes/macrophages.

https://www.ncbi.nlm.nih.gov/pubmed/1646280






John Beldekas


(Photo by Jane Teas)


"In August, 1986, John Beldekas was invited to go to the NCI and present his findings on the link between ASFV [African Swine Fever virus] and AIDS, which he did. Beldekas gave samples of all his lab work to Gallo. Later, the government asked Beldekas to turn over all his reagents and lab work to the government, which he did. Beldekas had found ASFV presence in nine of 21 AIDS patients using two standard procedures. At the meeting, Gallo was reported saying: “we know it is not ASFV.” How could Gallo know this as he hadn’t done any of his own tests to look for ASFV?
Two months later, Gallo published an article in Science (Oct 31, 1986) that he discovered a new possible co-factor in AIDS, a virus he called Human B Cell Lymphotropic Virus which he named HBLV. Like ASFV, HBLV infected B cells and also lived in macrophages. Did Gallo steal Beldekas’s ASF virus he found in AIDS patients and rename it HBLV? Later on, when Gallo found that HBLV could also infect other immune cells, he changed the name of HBLV to HHV-6. Eventually, Gallo identified his HBLV as the variant A strain of HHV-6 and called it a human herpesvirus."
--Mark Konlee



http://www.keephopealive.org/report10.html

https://www.nytimes.com/?WT.z_jog=1&hF=t&vS=undefined
To the Editor: Last September, while conducting a preliminary sociomedical study on acquired immune deficiency syndrome in Rwanda, in the eastern part of central Africa, I was surprised to learn that 50 percent of the pig population had died in an African swine fever epidemic that had begun in December 1983. The epidemic spread northward from Burundi to south-central Rwanda near Butare. This is the same area where Dr. Philippe van de Perre of St. Pierre's Hospital in Brussels and his associates found that 27 of 33 female prostitutes had AIDS or AIDS-related complex, what must certainly be the highest proportion of persons with such symptoms in any at-risk sample yet studied. Eighteen percent of samples of adult blood donors and hospital employees in Kigali, the capital city, were seropositive to human immunodeficiency virus antibody last year. This year, the percentage has increased to 24. Human immunodeficiency virus, in Rwanda at least, appears to be the necessary but not sufficient condition to produce AIDS. Perhaps the African swine fever epidemic and the high rate of illness among prostitutes near Butare is just a coincidence. But, with the recent African swine fever scare caused by the discovery of sickly pigs near Belle Glades, Fla., and with the report by Dr. John Beldekas of Boston University and his associates of some evidence of infection by the African swine fever virus in nearly half of a sample of 21 AIDS patients in the United States, epidemiologists and veterinarians might do well to explore the possibility that this virus is a co-factor in AIDS transmission in central Africa and perhaps other regions of the world. DOUGLAS A. FELDMAN New Haven, July 23, 1986 The writer, a medical anthropologist, is a research fellow at Yale University's Human Relations Area Files Inc.






Learn more about African Swine Fever in Chronic Fatigue Syndrome in this book.




The definitive history of the
Chronic Fatigue Syndrome cover-up.

As the publisher and editor-in-chief of a small newspaper in New York, Charles Ortleb was the first journalist to devote a publication to uncovering the truth about Chronic Fatigue Syndrome. He assigned Neenyah Ostrom the duty of following every twist and turn of the Chronic Fatigue Syndrome story. No newspaper in the world did more to warn the world about the virus called HHV-6 which seems to be triggering Chronic Fatigue Syndrome and many other immunological disorders.

This provocative book will end the injustice of the silent treatment Neenyah Ostrom's reporting has been getting from the media and The Chronic Fatigue Syndrome community. Ostrom blew the lid off one of the biggest medical secrets of our time: the link between the Chronic Fatigue Syndrome epidemic and AIDS.

Ostrom interviewed most of the major researchers in the field, as well as countless patients and government scientists. She uncovered so many similarities between Chronic Fatigue Syndrome and AIDS that she came to the conclusion that they are part of the same epidemic, and she argued that until their connection is admitted by top government researchers, there is little hope of making real progress in the fight against Chronic Fatigue Syndrome.

Charles Ortleb's book captures all the challenges and excitement of running a small newspaper that was publishing a brilliant journalist who essentially was the Woodward and Bernstein of the Chronic Fatigue Syndrome epidemic. In Rolling Stone, David Black said Ortleb's newspaper deserved a Pulitzer Prize.


Why people concerned about HHV-6 and HHV-6 diseases like AIDS and Chronic Fatigue Syndrome need to take a closer look at sick pigs.





https://edoc.rki.de/bitstream/handle/176904/2873/26CmQlAjmEymo.pdf?sequence=1&isAllowed=y

Neenyah Ostrom, writing in The New York Native, June 15, 1992 stated: [ASFV also strongly resembles CMV, according to retired USDA Plum Island Animal Disease Laboratory ASFV researcher William Hiss. In a 1971 textbook, African Swine Fever Virus, Hess pointed out that “...Herpes simplex virus and ...human Cytomegalovirus have morphological appearances similar to ASF virus when seen in thin sections.” In other words, when tissue infected with ASFV are examined under the microscope, the ASFV “looks like human herpes virus.


https://keephopealive.org/report10.html

How the American science Robert Gallo may have stolen the African Swine Fever research of a Boston University scientist and may have given African swine Fever the fraudulent new name of "HHV-6."

"In August, 1986, John Beldekas was invited to go to the NCI and present his findings on the link between ASFV [African Swine Fever virus] and AIDS, which he did. Beldekas gave samples of all his lab work to Gallo. Later, the government asked Beldekas to turn over all his reagents and lab work to the government, which he did. Beldekas had found ASFV presence in nine of 21 AIDS patients using two standard procedures. At the meeting, Gallo was reported saying: “we know it is not ASFV.” How could Gallo know this as he hadn’t done any of his own tests to look for ASFV?
Two months later, Gallo published an article in Science (Oct 31, 1986) that he discovered a new possible co-factor in AIDS, a virus he called Human B Cell Lymphotropic Virus which he named HBLV. Like ASFV, HBLV infected B cells and also lived in macrophages. Did Gallo steal Beldekas’s ASF virus he found in AIDS patients and rename it HBLV? Later on, when Gallo found that HBLV could also infect other immune cells, he changed the name of HBLV to HHV-6. Eventually, Gallo identified his HBLV as the variant A strain of HHV-6 and called it a human herpesvirus."
--Mark Konlee


http://www.keephopealive.org/report10.html


Case of Acute Flaccid Myelitis linked to HHV-6


"6th case-HR, 13 month old girl with carnitine deficiency, stable, fever for 3 days followed by rash and weakness in both lower extremities and LEFT arm, depressed mental status, seizures, CSF with 43 white cells, CSF positive for HHV-6 by PCR, 4370 copy/ml, negative repeat CSF and blood, MRI with gray and white matter edema in cervical and thoracic cord, brainstem, basal ganglia edema, , bilateral patchy white matter changes in brain, treatment with IV steroids, IVIG, IV ganciclovir, oral valganciclovir, oral steroids, diagnosis of ADEM and AFM with Roseola, HHV-6 infection, much improved at 1 month, full recovery at 6 months, probable AFM per CDC."

https://www.dshs.texas.gov/uploadedFiles/Content/Prevention_and_Preparedness/immunize/TIC%20-%2011-28_3-15_Acute-Flaccid-Myelitis-in-Texas_Murphey.pdf







HHV-6 is discussed in this Chronic Fatigue Syndrome Amazon bestseller on pages 98, 100, 122, 133-135, 143-147, 150, 153, 159, 163, 166, 179, 183, 192, 193, 198, 199, 200, 202, 204, 205, and 211.

Ampligen, the breakthrough treatment for Chronic Fatigue Syndrome is discussed in the Amazon bestseller on pages 192, 193, 202, 203, 268, 269, 360, 362, 387, 391, 410, 413, 420, and 421.


Anthony Fauci, the architect of the CFS cover-up, is discussed in this Amazon bestseller on pages 71, 103, 104, 26, 130-133, 139, 143, 157, 161, 169-171, 173, 174, 221, 254, 289, 292, 293, 300, 320-322, 324, 335, 356-358, 361, 367, and 398.

Dr. Paul Cheney, one of the honest pioneers of Chronic Fatigue Syndrome research is discussed in the Amazon bestseller on pages 145, 146, 155, 166, 192, 219, 225, 226, 232, 242, 244, 326, 327, 352, 402, 434, and 435.

Konnie Knox's pioneering research into HHV-6 is discussed in this book on page 428-431.

Hillary Johnson's brilliant reporting on Chronic Fatigue Syndrome is discussed in this Amazon bestseller on pages 407, 424, 431, 435, 436, 438 and 449.

The CDC's organized lying about the nature of  the AIDS epidemic is discussed in this book on page 432.

The role of pharmaceutical companies in developing deadly propaganda about AIDS is discussed in this book on page 440.

The crimson crescents in the throats of patients with Chronic Fatigue Syndrome are discussed in this book on page 443. 

The link between Chronic Fatigue Syndrome and Gulf War Syndrome is discussed in this book on page 447.

The crooked science of Robert Gallo is discussed on pages 31-51, 53, 54, 59, 78, 79, 93-107, 121, 126, 128, 131, 133, 134, 143-147, 152, 171, 179, 181, 101, 192, 198-200, 213, 214, 221-224.

The transmission of Chronic Fatigue Syndrome between people and their pets is discussed in this Amazon bestseller on pages 198, 225, 226, 242, 243, and 323. NK cells in CFS are discussed in this book on pages 158, 159, 160, 170, 183, 192, 200, 203, 204, 214, 242, 278, 279, 280, 282, 319, 323, 364, 370, 391, 398, 422.







On April 16, 1996, Congressman Jerrold Nadler spoke on the floor of Congress about his request for a General Accounting investigation into how the CDC had handled the Chronic Fatigue Syndrome epidemic. Nadler did that at the urging of Charles Ortleb, the publisher and the New York Native and his reporter Neenyah Ostrom. Ortleb and Ostrom had made the case to Nadler that Chronic Fatigue Syndrome and the virus it had been linked to, HHV-6, were serious public health issues.         
                                      
In an interview in New York Native with Neenyah Ostrom,Congressman Nadler said, "Congress can mandate research into CFS as a viral disease. Maybe it will turn out that HHV-6A is the cause of CFS; maybe it will turn out that other viruses are involved. But Congress can mandate research into CFS as a contagious, viral disease. I will certainly try to get Congress to do that as soon as possible."

Unfortunately, back in 1996, Nadler's warning to Congress and the medical establishment fell on deaf ears. But now that the Democrats have regained power in the House of Representatives, the newly prominent Congressman Nadler may finally be able to bring the Chronic Fatigue Syndrome epidemic and HHV-6 to the public's attention.

This book by Charles Ortleb, which details Neenyah Ostrom's diligent reporting on Chronic Fatigue Syndrome, is necessary reading for anyone who wants to know the whole history of an epidemic which has been hidden in plain sight. For a decade, starting in 1988, Ostrom reported on Chronic Fatigue Syndrome and the damage that the virus HHV-6 does to patients. What her reporting uncovered about the true nature of the Chronic Fatigue Syndrome epidemic will shock you. 

In The Chronic Fatigue Syndrome Epidemic Cover-up, Charles Ortleb recounts his newspaper's fascinating struggle to get the medical and political establishment to pay attention to Ostrom's pioneering investigative reporting on Chronic Fatigue Syndrome. 

By the time you finish Ortleb's stunning memoir, you will understand why the CDC has been unwilling to tell the public the truth about Chronic Fatigue Syndrome. The CDC does not want the public to know that Chronic Fatigue Syndrome is a transmissible illness linked to a virus that affects every system in the body. They have covered up the illness for so many decades that the neglected virus is totally out of control. Now it is causing a long list of other illnesses and many cancers. The CDC has put us all in danger.

Ostrom's decade of reporting on HHV-6 was recently vindicated by this statement from scientists at the University of Wurzburg:"While HHV-6 was long believed to have no negative impact on human health, scientists today increasingly suspect the virus of causing various diseases such as multiple sclerosis or chronic fatigue syndrome. Recent studies evensuggest that HHV-6 might play a role in the pathogenesis of several diseases of the central nervous system such as schizophrenia, bipolar disorder, depression or Alzheimer's." 

The big question about Neenyah Ostrom and New York Native is this: How many lives would have been saved if the scientific establishment and the mainstream media had paid more attention to Neenyah Ostrom's reporting on HHV-6 and Chronic Fatigue Syndrome in New York Native?             

One day, if there is any justice in the world, the CDC and the medical establishment will apologize for not paying attention to Neenyah Ostrom's groundbreaking work on Chronic Fatigue Syndrome that Charles Ortleb published in New York Native. That would be a fitting end to one of journalism's greatest David and Goliath stories.    

Anyone who wants to help Congressman Nadler and the other members of Congress who are trying to end the suffering of millions of people with Chronic Fatigue Syndrome, needs to read The Chronic Fatigue Syndrome Epidemic Cover-up.
























Spotify podcasts about the HHV-6 and Chronic Fatigue Syndrome cover-up 




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