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Saturday, December 22, 2018

The letter we wish the NIH Director would send to the Chronic Fatigue Syndrome community.



Dear Dr. Collins,

Thank you for taking the time to meet with representatives of The Myalgic Encephalomyelitis Action Network (#MEAction) on Friday, December 7th. We appreciate your willingness to listen to our concerns and for the participation of Dr. Koroshetz, Dr. Nath, and NIH program staff.

We also appreciate that after our meeting with you, Dr. Koroshetz, Dr. Nath, and NIH program staff continued to meet with us for an extended time. We had useful discussions on various areas for NIH to make incremental progress and will follow up with them.

However, it was evident from our meeting that NIH lacks the urgency and commitment needed to deliver diagnostics and treatments to people with ME in time to save the millions of people whose lives and futures hang in the balance.

The NANDS working group’s charge lacks the mandate to achieve the kind of bold, time-driven outcomes we know the NIH can accomplish when the will is there. If NIH fails to act quickly and decisively, it will effectively sentence a generation who has already lived and waited decades for real progress, to die without ever seeing relief. Meanwhile, each year, thousands more Americans will receive their diagnosis without any more meaningful access to treatment or care than those who became ill in the 1980s.

You can accept this status quo, or you can do everything in your power to break this cycle.

The recent work of expert clinicians and researchers again demonstrate that there are numerous, untapped opportunities to deliver the first FDA-approved treatments and diagnostics within five years. But this will only happen through your leadership and innovation. You have the opportunity and position to make a dramatic difference for people with ME. We urge you to establish a strategic plan and provide the resources and vision needed to deliver these outcomes to people with ME as quickly as possible.

Sincerely,

Ben HsuBorger #MEAction 
Dear Ben,
Thank you for your letter. We enjoyed meeting with you. I think you'll be surprised to hear our good news.
We have decided that, because MECFS is so much like AIDS, we are going to immediately combine all AIDS and Chronic Fatigue Syndrome research into one big Manhattan Project kind of program. Chronic Fatigue Syndrome and AIDS will share all research funding. From now on, AIDS conferences will also be Chronic Fatigue Syndrome conferences. Our powerful biomedical institution will stop pretending that Chronic Fatigue Syndrome has nothing to do with AIDS. Any researcher who continues to promote that myth will be asked to find a new employer.
We have also decided that, because both AIDS and Chronic Fatigue Syndrome involve HHV-6 and its related viruses, we are going to give research priority to that virus. It has become clear that we are in the middle of an HHV-6/7/8 epidemic that threatens us all. As you know, The University of Wurzburg and Bhupesh Prusty have pretty much nailed the role of HHV-6 in Chronic Fatigue Syndrome.
We are also going to devote a substantial part of our budget to researching the use of AIDS drugs on Chronic Fatigue Syndrome patients. There have been several compelling reports of Chronic Fatigue Syndrome patients getting better on AIDS drugs like protease inhibitors and Ampligen. If studies support the use of these drugs, I will personally go to Congress and the White House to ask that all MECFS patients receive free treatment. You all have suffered enough.
We're also going to ask Robert Gallo, the scientist who claimed to have discovered the Chronic Fatigue Syndrome virus, HHV-6, to oversee trials of a drug Epiphany Biosciences (a company he co-founded) has developed for HHV-6. The promising drug is called Valomaciclovir.
I will also ask Dr. Gallo to fly to the headquarters of the World Health Organization to urge them to also combine all AIDS and Chronic Fatigue Syndrome research and treatment efforts.
We have also decided to make Chronic Fatigue Syndrome a National Notifiable Disease so we can finally determine how many cases there really are.
Given that it is clear MECFS is contagious, we are assigning a team of epidemiologists to monitor the transmission of the illness. We will be especially interested in the way that it is spread in families, schools, businesses, and healthcare settings. We will try to figure out what people can do to protect themselves from contracting this illness. But I do have to warn you that, given that this epidemic is several decades old, there may be little we can do to control it. We are concerned that we may not even be able to control the transmission of MECFS in our NIH facilities.
I hope this new agenda meets with your approval. I also hope you enjoyed the special NIH donuts we served at our meeting. I'm sorry I did not have time to pull out my famous guitar and sing "The Lady Upstairs," the very moving Chronic Fatigue Syndrome song I often play for my MECFS research staff to inspire them.
Thank you for being a passionate stakeholder and I look forward to reporting on our research progress in the near future.
Francis S. Collins


The transmission of Chronic Fatigue Syndrome between people and pets.


Why you need to read the second volume of The Chronic Fatigue Syndrome Epidemic Cover-up




Available now at Amazon in print and Kindle versions.

Why has the truth about the growing Chronic Fatigue Syndrome epidemic been hidden from the public?

What are the CDC and NIH afraid of?

Are they afraid of public panic? Are they afraid that they will be sued for malpractice and lose their credibility?

Why have millions of people who have so-called Chronic Fatigue Syndrome, an obviously contagious illness that is often called "Non-HIV AIDS," been neglected and lied to? Why have their lives been ruined? Why have they been gaslighted by dishonest scientists who pretend their sometimes-fatal illness is all in their heads?

In this second volume of his brilliant history of the intertwined Chronic Fatigue Syndrome and AIDS epidemics, Charles Ortleb provides a detailed roadmap to the personalities and events that contributed to the biggest scientific and political cover-up of our time. Ortleb paints a picture of government malfeasance that will remind readers of Vietnam and Watergate.

Ortleb takes the reader back to ground zero at the CDC when the first mistakes that led to the Chronic Fatigue Syndrome disaster were made by researchers James Curran, Donald Francis, Mary Guinan and James Mason. Ortleb analyzes the cognitive bias and incompetence that prevented the early AIDS researchers from seeing the connection between Chronic Fatigue Syndrome, AIDS, and the virus that HIV fraud was hiding: HHV-6.

Ortleb identifies Anthony Fauci as a virtual Bernie Madoff who has been running a scientific Ponzi scheme that has hidden the truth about the relationship of Chronic Fatigue Syndrome, HHV-6, and AIDS. Ortleb argues that Fauci's cover-up of the truth about Chronic Fatigue Syndrome began in earnest at the 1992 Amsterdam AIDS conference when the first cases of AIDS without HIV emerged. Many of those cases were Chronic Fatigue Syndrome. Fauci used his power as Director of the National Institutes of Allergy and Infectious Diseases to conceal the connection between Chronic Fatigue Syndrome, HHV-6, and AIDS for almost four decades. Fauci won't even talk about Chronic Fatigue Syndrome because it threatens to reveal that everything he has told the public about the AIDS epidemic is false.

Ortleb also explores the role that disgraced AIDS researcher Robert Gallo played in created the fraudulent paradigm of AIDS that has concealed the truth about Chronic Fatigue Syndrome from the public. Together with Anthony Fauci, Gallo has helped create a sociopathic pseudoscientific universe in which anyone who dares to tell the truth about AIDS, HHV-6, or Chronic Fatigue Syndrome is virtually destroyed.

In the final section of the book, Ortleb covers the criticisms of scientists who tried, but failed, to blow the whistle on the massive HIV fraud that led to the cover-up of the HHV-6 epidemic which now includes Chronic Fatigue Syndrome, multiple sclerosis, autism, Alzheimer's, and many other immunological illnesses and cancers.

For decades, Ortleb has been criticized and mocked for focusing his journalism on HHV-6. But that is now changing. Ortleb's reporting on HHV-6's role in multiple diseases was recently vindicated by this statement from the University of Wurzburg: "While HHV-6 was long believed to have no negative impact on human health, scientists today increasingly suspect the virus of causing various diseases such as multiple sclerosis or chronic fatigue syndrome. Recent studies even suggest that HHV-6 might play a role in the pathogenesis of several diseases of the central nervous system such as schizophrenia, bipolar disorder, depression or Alzheimer's."

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